Tuesday, 22 July 2014

the challenges of severe autism;low mental capacity with rigid thinking

today/monday,self and two support staff were out food shopping in asda,before we left for asda had taken two haliperidol anti pyschotic pills as normal which always do before going anywhere to lessen severe challenging behavior and its causes.
we got in asda and had planned to buy a few things,including a pack of four ice creams and sweet corn as treats for the children [AKA binky and mabel].

for some reason there is a specific lump sum of money for spends each day with three pound of that for activity money but it has always been spent on anything because am not able to do activities every day, recently we got a new house manager who does everything by the word-which means changing a routine of mine that has always been there because she was on shift as support staff today with a regular support staff of mine,and as often happens staff always act mega strict when around managers.

was in the ice cream isle when was told that had got to the maximum money and had to have three pound left over for an activity that didnt exist,so to get ice cream was going to have to take away somethings from the basket-these were all items that were on a visual list in mind and was impossible to wipe and become unfocussed on-its impossible to remove or swap any.

they started removing goods and had felt very very bad because of it, started hitting out, punching everything as well as head banging and was trying to stop them from taking the stuff out the basket;was sat in the wheel chair thankfuly so did not end up throwing self to the floor and head butting it like old times but ended up kicking,punching and biting support staff who were invading the basket,and then threw something from the basket on the floor in frustration.
am very sorry if had hurt them,and will always feel guilt for any actions towards others but their attitude towards self really hurt,they dont truly understand this aspect of self,and assumed was being challenging for the hell of it.
they said they were going to take em/self back to the car without any shopping so quickly put the breaks on the wheel chair and got really frustrated so more behavior came out,ended up having another two pills of haliperidol.

the thinking is,its a visualy planned mental list,and removing any of it makes no sense to self plus its very distressing to cope with.
they usualy calculate as we go along so we dont get this problem but they made a guess at it this time.
wish people were more open minded instead of using threats.

Saturday, 19 July 2014

pulled into the twenty first century for AAC and autism apps

am not having to relie on laminated PECS and limited makaton anymore for AAC or timelines, recently/a few weeks ago had bought a asus memo hd...something tablet which has android running on it,its been bought purely for aac and autism apps but have added a few games to aid as distraction when having to wait for anything-which is a major cause of anxiety and severe challenging behavior for self.

these are the best free apps have come across so far;

this is a photo of tomorows timeline which am able to put together with staff support,they can also make the timelines from the office pc and am able to sync the tablet via the laptops mobile data connection.
its extremely useful and better than carrying around a clumsy laminated board with PECS that easily fall off.

its the best android AAC app have got,its easy to use and although it hasnt become a part of daily use as am still getting used to using high tech AAC again, its a favourite and hope it to become a regular part of communication.

if anyone knows of any decent free AAC programs for android,please post.

reprizentin special olympics

a small post but finaly got the athlete polo tshirt today,feel very proud to be representing the special olympics even though am at a low ability level.
hope to represent us in the next nationals but even if dont manage to get in,in time will go along and watch it,as know quite a few athletes.

Wednesday, 16 July 2014

rabbit cuteness;photos included

here is mabel and binky orally accepting some new tasty apple tree branches that their grandad had cut off for them.

 lady binkerton AKA binky playing the role of alex poleski from the hotel inspector, inspecting her house after a deep clean,she stormed the place before being able to put bedding in.

mabel digglesworth AKA....mabel carrying out the complex rabbit procedure known as the binky, when a rabbit binkies, it means they jump in the air and their body twists; in a fit of pure rabbit energy.

adapted cycling; autism friendly

went to the usual adapted/specialist cycling club today though attended a park in north manchester instead of wythenshawe park and rode a semi recumbent bike around the athletics track with support staff,whilst the other support staff sat and furiously washed her hands over and over with alcohol hand wash [she is OCD and a half].
heres some photos;

woud strongly recommend to anyone who can get to manchester,UK to try out this cycling club; wythenshawe wheelers is the best but its also based at longford park and north manchester to.
theres no membership needed,just turn up and its two pound,plus any support staff with an individual can cycle for free with them.